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Uganda Albinism awareness

An albinism activist in Uganda

Tackling deadly myths.

People with albinism are hidden away, hunted and even killed for their body parts in areas of eastern Uganda. With no access to information about the condition, communities can be led to believe in false myths, with dangerous consequences.

Myths around albinism are widespread and dangerous.

People with albinism lack the gene for producing melanin, a natural substance that gives colour to the human hair, skin and eyes and protects the skin from the ultra violet light of the sun. However in parts of Uganda where research and technology aren't readily available, this medical condition is often perceived as witchcraft.

People with albinism are hunted for their body parts because they are said to bring good fortune; women with albinism face a higher risk of sexual abuse because sex with a person with albinism is thought to bring wealth and cure HIV/Aids. Faced with such stigma and danger, people living with albinism tend to live in isolation.

Dispelling the myths.

We helped people with albinism to form local groups to campaign for their rights and fight back against dangerous myths. Together we:

Campaigned for cheaper sun protection. We built the capacity of activists so they could lobby and influence policy makers to waive the tax on sunscreen for people with albinism, who have highly sensitive skin and are more susceptible to skin cancer. 

Held community ‘sensitisation’ workshops. Activists educated others about the challenges faced by people with albinism, running successful workshops with local government leaders, police, religious leaders and traditional healers. 

Ran media campaigns. Activists featured on radio and television talk shows to raise awareness about the condition. 

ADD International was a founding partner in helping these organisations get off the ground. Many have now been successful in finding other funding partners, namely Advantage Africa, who are helping them continue their work helping thousands of people with Albinism in Uganda.

Activist impact

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Visibility

People with albinism are no longer being hidden away, and are represented in various areas of their community

Changing attitudes

Disability activists are helping to dismantle stigma and increase people's understanding of albinism

Collaboration

Cooperation and support from government and other organisations, means activists can reach out and multiply their message

Stories

Peter, Uganda

Peter, Uganda

Frontline Activist

Peter is an albinism activist in Uganda where there are still many myths attached to albinism, including that persons with albinism are cursed, are punishments from the gods, are ghosts, have supernatural powers, or do not die.

Elizabeth, Uganda

Elizabeth, Uganda

Ignored by her family, Elizabeth was bullied and beaten at school and abused by her neighbours for her disability. Her husband later abandoned her and she was the victim of an attempted kidnapping plot to trade her body parts. Read how she turned her life around through her activism and resilience.

Rebecca, Uganda

Rebecca, Uganda

Rebecca was shunned by her community because they didn't understand what albinism is. They called her names and thought she wasn't human. Read how the work of disability activists has helped change the stigma in her town.

Lets build movements together.

Millions of disabled people in Africa and Asia are still condemned to a life of poverty and exclusion. Right now, organisations of disability activists are working to fight discrimination and ensure every disabled person gets a fighting chance at living their best life. They urgently need your support.