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Peter Frontline Activist

Peter Ogik, disability activist Uganda

Peter's Story.

Disability Activist, Uganda.

In Uganda there are lots of dangerous myths towards people with albinism. People believe that it is a punishment from God, or that if you get the body part of someone with albinism it will bring you wealth.

"People with albinism are surrounded by fear.

We have been hidden away, ashamed and scared to speak in public.

I was told by my parents that when I was born, many of their friends distanced themselves. They thought I was cursed."

Partnering with ADD International.

"I got together with a few other people with albinism, we wanted to try and change things but we didn’t have any idea of what we could do.

We connected with ADD International who helped us to build our capacity, understand our rights and what we need to do to change society.

We set up our organisation which now works to change people's attitudes to albinism and to change government policies so that we can access all our rights."

Changing attitudes.

"For a child that’s grown up being told she’s nothing but a curse it takes time to change that idea. It’s a gradual process. It’s not easy. We use music to share our message of unity, love and dignity for all human beings. We need to be creative about tackling discrimination - and music has such power to reach people. Let us continue to fight together against violence, isolation and discrimination.

We need to get the message out that people with albinism are human beings like other people."

Changing lives.

"I have received many different trainings, like how to influence policy makers to create policies that will protect people with albinism. We recently launched a campaign to get the government to waive taxes on sun protection cream for people with albinism. Sun cream is very expensive and our skins make us very susceptible to cancer.

Through ADD International we are helping thousands of people living with albinism in Uganda."

Let's build movements together.

Millions of disabled people in Africa and Asia are still condemned to a life of poverty and exclusion. Right now, disability activists like Peter are working to fight discrimination and ensure every disabled person gets a fighting chance at living their best life. They urgently need your support.

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