“There are a lot of myths towards people with albinism in Uganda.
People believe that it’s a punishment from God, or that if you get the body part of someone with albinism, such as a tooth, nails, the umbilical cord or tongue, it will bring you wealth. I was told by my parents that when I was born, many of their friends distanced themselves. They thought I was cursed.
We have been hidden away for a long time; ashamed and scared to speak in public because of these misconceptions. I got together with a few other people with albinism, we wanted to try and change things but we didn’t have any idea of what we could do.
PARTNERING WITH ADD INTERNATIONAL.
We connected with ADD International who helped us to build our capacity, understand our rights and what we need to do to change society. I have received many different trainings, such as how to lobby effectively and how to influence policy makers to create policies that will protect people with albinism. I am now the first person living with albinism to be the Chair of the National Youth with Disability forum in Uganda.
We recently launched a campaign to get the government to waive taxes on sun protection cream for people with albinism. Sun cream is very expensive and our skins make us very susceptible to cancer.
Through ADD International we are helping thousands of people living with albinism in Uganda.