Frontline Activists.

Peter Ogik, Uganda.

DANGEROUS MYTHS.

“There are a lot of myths towards people with albinism in Uganda. 

People believe that it’s a punishment from God, or that if you get the body part of someone with albinism, such as a tooth, nails, the umbilical cord or tongue, it will bring you wealth. I was told by my parents that when I was born, many of their friends distanced themselves. They thought I was cursed.

We have been hidden away for a long time; ashamed and scared to speak in public because of these misconceptions. I got together with a few other people with albinism, we wanted to try and change things but we didn’t have any idea of what we could do.

PARTNERING WITH ADD INTERNATIONAL.

We connected with ADD International who helped us to build our capacity, understand our rights and what we need to do to change society. I have received many different trainings, such as how to lobby effectively and how to influence policy makers to create policies that will protect people with albinism. I am now the first person living with albinism to be the Chair of the National Youth with Disability forum in Uganda.

We recently launched a campaign to get the government to waive taxes on sun protection cream for people with albinism. Sun cream is very expensive and our skins make us very susceptible to cancer.

Through ADD International we are helping thousands of people living with albinism in Uganda.

Peter Ogik chatting with a group member
Peter Ogik out in the field
Peter Ogik in conversation with a person with albinism

CHANGING ATTITUDES.

It’s very hard sometimes to change people’s thoughts. For a child that’s grown up being told she’s nothing but a curse it takes time to change that idea. It’s a gradual process. It’s not an easy process. We use music a lot to share our message of unity, love, respect, dignity, social justice and equal opportunities for all human beings. We need to be creative about tackling discrimination - and music has such power to reach people. Let us continue to fight together against violence, isolation and discrimination.

We need to get the message out that people with albinism are human beings like other people. 

INSPIRED?

Millions of disabled people in Africa and Asia are still condemned to a life of poverty and exclusion. Right now, organisations of disability activists like Peter's are working to fight discrimination and ensure every disabled person gets a fighting chance at living their best life. They urgently need your support. 

 

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