"In 2009, people started sacrificing people with albinism.
I was still at school, and my tutors would tell me not to go to town because of the sacrificing. I was so scared, even before they had told me not to go into town… I had stopped going.
My father was educated, so when I was born my parents took it well and they loved me, they have never said they don’t love me. But the community around us discriminated against me. People would call me names or abuse me, they would say ‘these people are not human beings, they are like pigs’. I would feel bad, I would ask my mum ‘why are they calling me a pig?’ Sometimes I would cry, the other kids wouldn’t want to play with me.
I joined a group of albinism activists and my life changed.
EFPA is Uganda’s first disabled people's organisation specifically for people with albinism. It is funded by ADD International and they have given us training in advocacy and campaigning. We have run trainings, workshops and media campaigns to raise awareness of albinism as a medical condition and to challenge the myths that exist.
People in the community have been sensitised. Now they understand what it means to have albinism, that we are not ghosts or demons but human beings as well.
I feel like there is a change, there is improvement.
I feel very proud of it, because I explain to people what they should do and what they should not do. The sensitisation has helped us become approachable to others. The people who hated me in the village... now they are friends, because they understand."
Let's build movements together.
Millions of disabled people in Africa and Asia are still condemned to a life of poverty and exclusion. Right now, organisations of disability activists like Rebecca's are working to fight discrimination and ensure every disabled person gets a fighting chance at living their best life. They urgently need your support.
MEET MORE DISABILITY ACTIVISTS
Peter is an albinism activist in Uganda where there are still many myths attached to albinism, including that persons with albinism are cursed, are punishments from the gods, are ghosts, have supernatural powers, or do not die.
Ignored by her family, Elizabeth was bullied and beaten at school and abused by her neighbours for her disability. Her husband later abandoned her and she was the victim of an attempted kidnapping plot to trade her body parts. Read how she turned her life around through her activism and resilience.
Tulli, a disability activist from Tanzania, talks to us about growing up with albinism in a time when people with his condition were being massacred.